Comments on: What is Goldman-Favre syndrome? http://www.ophthodeck.com/cards/142 Online ophthalmology flashcards Mon, 06 Feb 2012 05:52:55 +0000 http://wordpress.org/?v=2.5 By: sean http://www.ophthodeck.com/cards/142#comment-55 sean Mon, 11 Apr 2011 03:36:42 +0000 http://www.ophthodeck.com/?p=142#comment-55 I'm 22 years old and I was diagnosed at the age of 15. I too have this disease. Since I was a kid I had night blindness. I lost central vision in my left eye since I found out at 15 years old. I still have peripheral vision though. I never noticed it until I went to the eye doctor. I have a big schisis cavity in the left eye. The other better eye takes over and you never notice. My right eye has been the same roughly since then. I see 20/25 because I have cataracts as well. I can't enjoy 3d stuff but I am just happy it has not gotten worse to the point I can't see at all. I pray for a cure every day so no one else has to endure this disease. I wish everyone the best of luck. I’m 22 years old and I was diagnosed at the age of 15. I too have this disease. Since I was a kid I had night blindness. I lost central vision in my left eye since I found out at 15 years old. I still have peripheral vision though. I never noticed it until I went to the eye doctor. I have a big schisis cavity in the left eye. The other better eye takes over and you never notice. My right eye has been the same roughly since then. I see 20/25 because I have cataracts as well. I can’t enjoy 3d stuff but I am just happy it has not gotten worse to the point I can’t see at all. I pray for a cure every day so no one else has to endure this disease. I wish everyone the best of luck.

]]> By: Virgil http://www.ophthodeck.com/cards/142#comment-54 Virgil Tue, 29 Mar 2011 13:55:01 +0000 http://www.ophthodeck.com/?p=142#comment-54 Hi I'm 56. this condition really manifested itself when I was Approx. 36. I had rapid vision loss, then I received two new lenses. Now I see very well. I still have the eye disease and can't drive but hey I can see. Upon my last visit my doc said my vision hasn't changed in a long time. It's hereditary. It's life. Some people get worst things, so look at what you have not what you could have. Just an opinion. Hi I’m 56. this condition really manifested itself when I was Approx. 36. I had rapid vision loss, then I received two new lenses. Now I see very well. I still have the eye disease and can’t drive but hey I can see. Upon my last visit my doc said my vision hasn’t changed in a long time. It’s hereditary. It’s life. Some people get worst things, so look at what you have not what you could have. Just an opinion.

]]> By: John P http://www.ophthodeck.com/cards/142#comment-53 John P Mon, 28 Mar 2011 01:42:32 +0000 http://www.ophthodeck.com/?p=142#comment-53 Can someone share what symptoms they have with their GF? Also is there any forum or mailing list for people with GF? Can someone share what symptoms they have with their GF? Also is there any forum or mailing list for people with GF?

]]> By: Nicci http://www.ophthodeck.com/cards/142#comment-52 Nicci Tue, 15 Mar 2011 18:20:45 +0000 http://www.ophthodeck.com/?p=142#comment-52 Hello, Although you posted this some time ago I thought id share, I'm 24 years old and also have Goldmann Farve Syndrome (as does my sister), it is indeed an inherited condition that i got from both my parents carrying the genetics for it. My condition has generally remained the same since birth, only really deteriating with age. The biggest impact it has on my life is not being able to drive but other than that I try to ensure it doesnt have a greater impact on my life :-) Hello, Although you posted this some time ago I thought id share, I’m 24 years old and also have Goldmann Farve Syndrome (as does my sister), it is indeed an inherited condition that i got from both my parents carrying the genetics for it. My condition has generally remained the same since birth, only really deteriating with age. The biggest impact it has on my life is not being able to drive but other than that I try to ensure it doesnt have a greater impact on my life :-)

]]> By: Nini http://www.ophthodeck.com/cards/142#comment-50 Nini Sat, 10 Jul 2010 13:38:25 +0000 http://www.ophthodeck.com/?p=142#comment-50 Hi Janice, I just notice that you posted the question 2 years ago. Anyway I thought I share this: I am 35yo and have been diagnosed with Goldman favre syndrome 8 years ago, since then I check my eyes every year and the doctor said that it doesn't change so now he told me to come every 2 years. They still don't know what cause it, just genetic thats what I know. So far there is no cure so I just keep praying that it doesn't get worse. Hope your nephew's eyes doesn't get worse either. Hi Janice, I just notice that you posted the question 2 years ago. Anyway I thought I share this:
I am 35yo and have been diagnosed with Goldman favre syndrome 8 years ago, since then I check my eyes every year and the doctor said that it doesn’t change so now he told me to come every 2 years. They still don’t know what cause it, just genetic thats what I know. So far there is no cure so I just keep praying that it doesn’t get worse. Hope your nephew’s eyes doesn’t get worse either.

]]> By: Liran http://www.ophthodeck.com/cards/142#comment-45 Liran Sat, 11 Apr 2009 01:21:43 +0000 http://www.ophthodeck.com/?p=142#comment-45 It might be a bit late but I hope this helps: My girlfriend has this syndrome and every time she goes to her eye doctor (about once a year) he tells her that her vision hasn't gotten any worse, which is how it usually is with people with Goldman-Favre Syndrome. Like I said "usually" but that's all I know. Sincerly, L. It might be a bit late but I hope this helps:
My girlfriend has this syndrome and every time she goes to her eye doctor (about once a year) he tells her that her vision hasn’t gotten any worse, which is how it usually is with people with Goldman-Favre Syndrome.

Like I said “usually” but that’s all I know.
Sincerly,
L.

]]> By: Janice Lloyd http://www.ophthodeck.com/cards/142#comment-41 Janice Lloyd Sun, 07 Sep 2008 06:20:33 +0000 http://www.ophthodeck.com/?p=142#comment-41 My nephew has recently been diagnosed with Goldman Favre Syndrome. He is 22 years old and is in good health otherwise. Could you please tell me what causes this and will he completely loose his sight, and how long until he's blind? Are there any medications that will at least slow the progression down? Thank you for your time and input. Sincerely, Janice Lloyd My nephew has recently been diagnosed with Goldman Favre Syndrome. He is 22 years old and is in good health otherwise. Could you please tell me what causes this and will he completely loose his sight, and how long until he’s blind? Are there any medications that will at least slow the progression down? Thank you for your time and input. Sincerely, Janice Lloyd

]]>